| Links and books that may be useful | ||||
to learn more about preemie problems | |||||
If you are new to parenting a preemie, you will find practical help, support, and useful information at www.prematurity.org, a site with an active discussion forum put up by parents of premature babies who have already experienced what you are going through and can give you first- hand advice. Once you have dealt with your preemie's immediate emergencies and can begin to reflect about your and your child's situation, go to http://mc2.vicnet.net.au/home/narf/index.html The NaRF dual-purpose forum / mailing list was established because too often the voices of families raising impaired NICU survivors and/or parents critical of current practices in neonatal care, are discouraged, drowned out, and suppressed. We would like to ensure that when discussions concerning the hardships of life with a disabled child and/or the ethics of neonatology take place, they do so in an environment which allows parents and professionals enough compassion, empathy and support to express themselves with honesty. We also hope that by allowing professionals to participate in the discussion list, they will better understand the human cost of raising a child who will never live independently. * Discount Diapers We can save you thousands on your diaper and other baby related purchases. * Lists of related books at Clicking on one of the book subject headings in the navigation bar will bring you to a current display of paper books and other publications on that subject offered by amazon.com: *
All links to other sites are posted here with the standard disclaimer that we are not responsible for policies or contents of sites other than our own, and that you visit them at your own risk.
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Contact us at retinopathyofprematurity.org | |||||
